I'm Curious. Who am I?
Posted on Feb 3rd, 2006
by
~Matthew
When I was 17, I was diagnosed with a brain tumor. It was about the size of a walnut and was located in such an "eloquent" part of my brain that it had to have been growing my whole life up to that point. In fact, this was the explanation for why I'd been having headaches every day of my life for the previous 17 years.
It takes courage to forgive doctors for denying that anything was wrong for so long... for not ordering an MRI until after brain damage had occurred. It takes courage to forgive yourself for not being more persistent in finding the root of your pain. It takes courage for parents to forgive themselves for not fighting harder against doctors who deny taking the steps that would have lead to an earlier diagnosis. A lot of courage is involved when a young man's life is threatened by a cause whose ultimate effect is uncertain. But this blog is not about courage. It's about experience and what that means.
The tumor destroyed the part of my brain--an aquaduct--that drains spinal fluid. Thus, there was a build-up of fluid in my head (a condition known as hydrocephalus). This pressure damaged my optic nerves, as well as caused a lot of pain. My pupils no longer dilate, and I have trouble seeing in the dark or the very bright. The damage to my brain from the tumor gave me double-vision, a condition that caused exponentially more agony in my life than any other condition I've had previous... including the 17-year-long headache. This condition was very thankfully eased to some degree five years after the onset by three surgeries from a very warm-hearted eye surgeon in Minnesota .
Stepping back to when I was 17, the first surgery that had to be done, was an emergency shunt placement--a procedure to insert a tube in my head that would drain the fluid into my abdomen where it would be absorbed by my body and discarded. This machinery is now a permanent part of my body. After the shunt was placed, my brain had to adjust to its new environment. What that meant to me was schizophrenic-like symptoms. I eventually believed myself responsible for the holocaust. It got so pathological that I thought that with every step, I was transporting into a different universe and that the universe that I had come from would go up in flames the moment I stepped out of it. This lead me to a state of catatonia... the only solution my body could come up with that would halt me from murdering so many sentient beings.
Eventually, with the help of anti-psychotic medication, I came out of my delusional state. The next step was to remove the tumor--a surgery that left me with impaired muscular ability in my eyes and more pronounced double vision. But it was the first time in my life that I understood what it fealt like to NOT have a headache.
Within a year, the tumor grew back bigger, putting it into a category of less benign than before. But radiation treatment resolved that issue in a much less invasive way than surgery and with fewer, though some minor, side-effects. The prognosis: Dead tumor. No chance of recurrence.
Woo hoo, right? Yes, for the most part. The next year, however, my shunt became clogged, and I fell into a mild coma that lasted for a day. The resulting two weeks of short-term memory loss left me with no recollection of that period of my life. The good news is I recovered my short-term memory and was able to go back to college after recovery. The bad news is my head gained one more scar and with it, one more area where hair no longer grows.
So, why did I say this blog is about experience? Well, let me try to explain my thoughts on how these and other major events in my life have given me an opportunity... an opportunity to contemplate.
Whether it was a depression resultant from a friend killing his family, pain from a tumor growing in my brain or from the side-effects of surgery, anguish from the torment of believing I had inadvertantly sold my soul to the devil, blissful release via some of the spiritual experiences that accompanied a small portion of my ordeal, delusions associated with total schizophrenic psychosis, or any of the other experiences that have accompanied my long life that has manifested thus far in a short period of time, one thing, and only one thing has remained constant. At one point, I was literally, albeit subjectively, in a completely different world... one where the devil would talk to me and I could predict the future. I bore witness to that. At another point, I thought I might end up harming a lot of people. I bore witness to those thoughts and feelings. At yet another point, I was on the edge of having my old personality and desparately wanting it back while having and exhibiting a different personality that I didn't want. I bore witness to that lack of control. I guess the point I am trying to make is I bore witness to a lot of different states of being--very diametrically opposing states of being. What I have come to realize is that they are all illusory. ALL of them, even the one you think is "normal." But the essence of that witness is constant. Yet it is easy to trick oneself into believing they have identity with that witness. But it is a very subtle awareness indeed. Very subtle, yet always obviously present at every moment.
When I think I have attained identity with "The Witness," I quickly scroll through the many different "selves" (sort of like a checklist) I have been and ask myself, "If I were in this state of being, would the Witness I believe I am identifying with now be the same in that circumstance." Many times, the answer is "no." So, what I was really identifying with is something else, most likely a perspective. I find the moments where I am truly Witness-identity are very subtle. Yet, it is impossible to escape that Witness. It is always present, has always been present, but It, as an identity, even disappears when non-dual awareness is recognized.
Now, if you don't mind, I would like to thank you for reading this. I welcome your comments. And in the spirit of non-duality, I thank you for being both the author and the reader of this blog entry.
Namaste,
~Matthew
It takes courage to forgive doctors for denying that anything was wrong for so long... for not ordering an MRI until after brain damage had occurred. It takes courage to forgive yourself for not being more persistent in finding the root of your pain. It takes courage for parents to forgive themselves for not fighting harder against doctors who deny taking the steps that would have lead to an earlier diagnosis. A lot of courage is involved when a young man's life is threatened by a cause whose ultimate effect is uncertain. But this blog is not about courage. It's about experience and what that means.
The tumor destroyed the part of my brain--an aquaduct--that drains spinal fluid. Thus, there was a build-up of fluid in my head (a condition known as hydrocephalus). This pressure damaged my optic nerves, as well as caused a lot of pain. My pupils no longer dilate, and I have trouble seeing in the dark or the very bright. The damage to my brain from the tumor gave me double-vision, a condition that caused exponentially more agony in my life than any other condition I've had previous... including the 17-year-long headache. This condition was very thankfully eased to some degree five years after the onset by three surgeries from a very warm-hearted eye surgeon in Minnesota .
Stepping back to when I was 17, the first surgery that had to be done, was an emergency shunt placement--a procedure to insert a tube in my head that would drain the fluid into my abdomen where it would be absorbed by my body and discarded. This machinery is now a permanent part of my body. After the shunt was placed, my brain had to adjust to its new environment. What that meant to me was schizophrenic-like symptoms. I eventually believed myself responsible for the holocaust. It got so pathological that I thought that with every step, I was transporting into a different universe and that the universe that I had come from would go up in flames the moment I stepped out of it. This lead me to a state of catatonia... the only solution my body could come up with that would halt me from murdering so many sentient beings.
Eventually, with the help of anti-psychotic medication, I came out of my delusional state. The next step was to remove the tumor--a surgery that left me with impaired muscular ability in my eyes and more pronounced double vision. But it was the first time in my life that I understood what it fealt like to NOT have a headache.
Within a year, the tumor grew back bigger, putting it into a category of less benign than before. But radiation treatment resolved that issue in a much less invasive way than surgery and with fewer, though some minor, side-effects. The prognosis: Dead tumor. No chance of recurrence.
Woo hoo, right? Yes, for the most part. The next year, however, my shunt became clogged, and I fell into a mild coma that lasted for a day. The resulting two weeks of short-term memory loss left me with no recollection of that period of my life. The good news is I recovered my short-term memory and was able to go back to college after recovery. The bad news is my head gained one more scar and with it, one more area where hair no longer grows.
So, why did I say this blog is about experience? Well, let me try to explain my thoughts on how these and other major events in my life have given me an opportunity... an opportunity to contemplate.
Whether it was a depression resultant from a friend killing his family, pain from a tumor growing in my brain or from the side-effects of surgery, anguish from the torment of believing I had inadvertantly sold my soul to the devil, blissful release via some of the spiritual experiences that accompanied a small portion of my ordeal, delusions associated with total schizophrenic psychosis, or any of the other experiences that have accompanied my long life that has manifested thus far in a short period of time, one thing, and only one thing has remained constant. At one point, I was literally, albeit subjectively, in a completely different world... one where the devil would talk to me and I could predict the future. I bore witness to that. At another point, I thought I might end up harming a lot of people. I bore witness to those thoughts and feelings. At yet another point, I was on the edge of having my old personality and desparately wanting it back while having and exhibiting a different personality that I didn't want. I bore witness to that lack of control. I guess the point I am trying to make is I bore witness to a lot of different states of being--very diametrically opposing states of being. What I have come to realize is that they are all illusory. ALL of them, even the one you think is "normal." But the essence of that witness is constant. Yet it is easy to trick oneself into believing they have identity with that witness. But it is a very subtle awareness indeed. Very subtle, yet always obviously present at every moment.
When I think I have attained identity with "The Witness," I quickly scroll through the many different "selves" (sort of like a checklist) I have been and ask myself, "If I were in this state of being, would the Witness I believe I am identifying with now be the same in that circumstance." Many times, the answer is "no." So, what I was really identifying with is something else, most likely a perspective. I find the moments where I am truly Witness-identity are very subtle. Yet, it is impossible to escape that Witness. It is always present, has always been present, but It, as an identity, even disappears when non-dual awareness is recognized.
Now, if you don't mind, I would like to thank you for reading this. I welcome your comments. And in the spirit of non-duality, I thank you for being both the author and the reader of this blog entry.
Namaste,
~Matthew
Tagged with: experience, pain, spirituality, suffering, healing, Who am I, Witness, Nondual, brain tumor, realization, psychosis

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Two things really stand out to me in this blog:
” I guess the point I am trying to make is I bore witness to a lot of different states of being–very diametrically opposing states of being. What I have come to realize is that they are all illusory. ALL of them, even the one you think is ‘normal. But the essence of that witness is constant.”
“… my long life that has manifested thus far in a short period of time.”
The wisdom of your long life - manifested thus far in a short period of time - definitely shines through. Thank you for such an important reminder of the truth of who I am. I am profoundly grateful.
You are most welcome, Nancy. And thank you for your kind comment.
What an amazing post! I love your realness Matthew. I am curious about who “I” am too…then as read, and witnessed my reading, parts of me could identify with parts of your many perspectives. Obstacles. The fact that you notice and acknowledge a witnessing presence throughout the changes in the body and the life situation is AWESOME!! And the fact that you further inquire deeper when you find identification happening is profound. You said, “What I have come to realize is that they are all illusory.” Thanks for reminding me! And yes, Truth is always subtle on one level and obvious when we truly realize it. (It’s funny like that isn’t it?) You are a miraculous manifestation of Being, as we all are, and I thank you for being so articulate and sharing your wisdom! Peace.
Much thanks for your comment and much love to you, Kari.
I also want to say thank you for such beautiful insights and sharing it with us all. I rather have different hardships in life than you but our sufferings are universal and same at the same time. I am happy you made it through and is with us this moment and glad your experiences with suffering had blossom such wisdom and blessings. Namaste.
I appreciate that, Yuri. Glad you could find a seed of wisdom in it. To you, as well… Namaste.
Oh matthew…(sigh) I have barely had time and access to email here in Costa Rica, but today I realized I haven’t read your blog in ages and found myself missing you. Its so funny too because we barely talked during the ILP, only the last night at the party. This post-for me- was extremely powerful. I caught up on your others too and have so so so much I want to talk with you about. But for now… I am not worried about how you will make money (easy for me to say- not being you) I feel that your purpose here on this wet planet is working itself out in the most extrordinary way. I am not just being fluffy- seriously. I have also put on and taken off the cloaks of many selves within a few short years and danced with delusions and devils and doctors and find myself HERE. Always already. But NOW, reading your words on the screen. The power of your words, your experience, your profundity of your depth the lightness of your humor, you KNOW that you have SO much TO DO in this world. Just as I do. Those of us living the resurrected life LIVE knowing that we choose to be here. Everyone does- but we know we do. And there is no fear of pain, madness, illness, or death, because we have witnessed those states arise and pass in our awareness just as every other state of being. You know, Matthew, that you are going to be very very busy for the rest of your days here on this rock, and it will not ultimately be crunching numbers for the census bureau.
Ok- I could go on and on
I am moved by what you wrote… you know, you WILL be writing a book on all this…
Dear Christiana,
This may just be a coincidence, but as I wrote this entry I had you in mind for a good portion of it. I, too, have been missing your presence. As I wrote, I remembered your question to Ken Wilber at the ILP, and I wondered if any of what I was writing would ring true for you, as well. You have no idea the satisfaction I feel now that my questions have been confirmed. Thank you, thank you, thank you for responding!
With Love,
Matthew
Thank you, Shelly. I appreciate your input. However, one of the distinctions I was trying to make in this blog is that there is a difference between perceiving or witnessing something in a certain way and Witnessing. The former is what I was referring to when I had not attained Witness-identity, that there is some perspective attached to it… whether it be positive or negative, a perspective nonetheless. The latter is much more subtle, something that trandscends perspectives altogether, places no judgment, is free and open, vast and immense… infinitely so. Consciousness… Emptiness, by any other name.
Ah I see your distinction now. That is interesting. Would I be far off to equate the Witness to what one might call the “Higher Self”… the soul part of us that is experiencing non-judgementally all that our human self is experiencing?
Close, but that Witness is higher than the soul. Whereas the soul is still distinct from other souls, the Witness not. In other words, the essence of that Witness that I can connect to is exactly the same as the essence of the Witness that you can connect to. And it is the last pit-stop on the way to Non-dual Awareness… when the Witness and all that is witnessed are realized to be one. Kind of like how you can see a river as having a source, a middle, and a mouth… or you can know it to be one river… the only way it can be.
Going back to the Witness being the same in you as it is in me, that is why I thanked you for being both the author AND the viewer of this blog entry. If you connect to that Witness, you will know it to be true!
For more on some of my thoughts on these “Higher Selves” read My Thoughts on Giving and Blind Faith VS. The Gift of Faith and the comments that follow. There’s a lot of other stuff in there, but some of it touches on these Selves, including the “Christ Self.”
Thank you Matthew for your patience and kindness in explaining. And “thank me”. I am really beginning to understand what Desmond speaks of when he refers to a “Online Social University.” I am grateful for the opportunity to learn, or maybe better yet, remember from so many wonderful beings.
You are a blessing.
*blushing*
What a remarkable entry! I wonder if this Witness you are referring to is the same as what is uncovered during insight meditation. There seems to be at the core of all of us something is that bears witness and is untouched by the various personas that we take on over life. It is, I think, that part that is awake even during our zombie like trek through life. Just some thoughts. Take gentle care.
Sounds like the same Witness to me! Thanks for your comment, Gemma!!
I like that, Gemma - we aren’t learning; we are remembering!
What an awesome story you are living Matthew! Amazing how incredibly painful, “terrible” experiences can be our biggest spiritual openings.
amazing…i’ve had a few friends that went through similar illness-induced mystical experiences…one with traumatic hearing loss…the other with a traumatic vision loss…both at very young ages…ever read “dark night of the soul” by john of the cross?
No, I haven’t. It must address this issue?
Matthew said “What I have come to realize is that they are all illusory. ALL of them, even the one you think is “normal.” But the essence of that witness is constant. Yet it is easy to trick oneself into believing they have identity with that witness. But it is a very subtle awareness indeed. Very subtle, yet always obviously present at every moment.”
i’ll be honest. i could never imagine what you went and are still going through. all i can say is that from now on, i’ll embrace my migraine headaches and welcome them as my humble tonglen to relieve an infinitesimal portion of your pain.
but you’re still not exempted. i will still make fun of you and call you names, just like the mean bullies did to me when i was growing up. who knows, maybe i’m just a pigment of your imagination too.
I don’t consider “Uber-geeky AQAL dude” a name; it’s a compliment.
Did you say “pigment” of my imagination? What does that mean?
yeah, it could’ve been a serendipitous typo. but pigment does fit the context. i’m constantly working on my English. and my typing.
At Epcot Center, they have a ride - I believe it's called Journey Through The Imagination. In it, there's a character named Pigment - “a figment of your imagination!” He's a little purple dragon who is very frolicky and playful. I think that fits Matthew - except for maybe the purple dragon part. ;-)
But I'm frolicky??
hehehe … at least in my journey through the imagination. =)